Ethical Challenges of Unregulated Health Research Using Mobile Devices
|When||February 22, 2018, 12:30 PM|
|Where||Bonnie E. Cone University Center Room 210|
|Speaker(s)||Mark Rothstein, Herbert F. Boehl Chair of Law and Medicine and founding director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine|
|Registration Details & Deadlines||RSVP here by Friday, February 16, 2018|
|Who is Invited||General Public, UNC Charlotte campus community|
|Parking Details||Validated parking tickets for Cone Visitors Parking Deck available for off campus attendees.|
Mobile devices including smartphones and tablets increasingly include apps that collect health information such as heart rate, blood pressure, blood sugar and more. At the same time, “citizen scientists” have begun engaging in health research. Independent researchers as well as patients and their family members can take advantage of direct-to-consumer genetic testing, patient access to their electronic health records, social media that link individuals with similar health conditions, and powerful computer algorithms that can search through numerous and diverse sources of data. The federal government does not fund this type of research; therefore it usually is not subject to any regulation. This talk will focus on key ethical issues including informed consent, privacy, and return of results when unregulated researchers undertake health research with mobile devices.